Rare Disease International (RDI) has opened the event platform for #SeeRare – the global Rare Disease Day event organized in partnership with the international Rare Disease Day campaign. #SeeRare will take place online on 28 February 2023, at 14.00 CET | 08.00 EST. The event aims to give greater visibility to rare disease groups around…
RDI is partnering with the EURORDIS Rare Barometer Survey project to launch the Global Survey on the Journey to Diagnosis for Persons Living with a Rare Disease. This survey aims to identify factors that influence the process of obtaining a diagnosis and obstacles along the journey. This is a global survey, available in 26 languages.…
The NGO Committee for Rare Diseases, Ågrenska Foundation, Rare Diseases International (RDI), and EURORDIS-Rare Diseases Europe are jointly organising their 2022 Global Rare Disease Day Event on the occasion of Rare Disease Day (February 28th) at the World Expo, Dubai. The event will take place from 07.30 – 13.30 CET (10.30 – 16.30 local time) at…