Chan Zuckerberg Initiative announces two patient-partnered Requests for Application (RFA) with rare disease focus

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The Chan Zuckerberg Initiative (CZI) is inviting applications from collaborative teams bringing together patient-led rare disease organisations and research teams for 4-year research projects aimed at advancing understanding of the fundamental science of rare diseases across two requests for applications (RFAs):  The Patient-Partnered Collaborations for Single-Cell Analysis of Rare Inflammatory Pediatric Disease RFA aims to support the application of single-cell biology…

EATRIS launches survey on Patient Engagement in Academic Research

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The European Advanced Translational Research Infrastructure in Medicine (EATRIS) together with the European Patients Forum (EPF), the European AIDS Treatment Group and the European Patients Academy (EUPATI) have co-launched a short anonymous survey on Patient Engagement in Academic Research. Targeted primarily at academic researchers, they encourage any academic researcher regardless of their research focus and…

Share4Rare 1st open call for patient-driven research projects

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The Share4Rare Project announces its 1st open call for patient-driven research projects targeted towards patient organisations and researchers in the field of rare diseases to apply for conducting their patient-centred studies within the platform. The call is currently open but will close on July 15th at 17:00 CET. Applicants who are selected can avail the following benefits: Facilitation of communication with patients, their carers…