Two-Day Online Workshop on Covering Rare Diseases
The National Press Foundation is organising a two-day online workshop entitled « Covering Rare Diseases ». The workshop will take place on September 13th-14th. EJP RD and IRDiRC Scientific Secretariat Coordinator Daria Julkowska along with other IRDiRC members Lucia Monaco (IRDiRC Consortium Assembly Chair), Durhane Wong-Rieger, Gareth Baynam, Samuel Agyei Wiafe, Anne Pariser and Ritu Jain will…