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covid19

New IRDiRC publication of the impact of COVID-19 on rare diseases

NewsPar Ngangta Mbaidoum20 janvier 2022

The International Rare Diseases Research Consortium (IRDiRC) has published the results of its COVID-19 survey in the Rare Disease and Orphan Drugs Journal.  The ambitious goals set by IRDiRC by 2027 to fulfill the vision of providing diagnosis and treatments to rare diseases (RDs) patients within one year of coming to medical attention have been challenged by the COVID-19…

Action for Rare Disease Empowerment (ARDEnt) Webinar: Making the Unseen Seen Report

NewsPar Ngangta Mbaidoum7 mai 2021

Action for Rare Disease Empowerment (ARDEnt), a cross-sector coalition 30 UK-based experts in rare diseases, is organizing a webinar on the findings of its Making the Unseen Seen report. The webinar will take place on May 11, 2021 from 20.00 – 21.00 CET. The ARDEnt Report reveals the impact of the Covid-19 pandemic on every stage of the rare disease…

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EJP RD INSERM Hôpital Charles-Foix
7 avenue de la République
94200 Ivry-sur-Seine
France

The EJP RD initiative has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575

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