The first call for new members to join existing 24 ERNs has been launched TODAY, 30 of September 2019 until 30 […]
Read MoreFor the first time ever, in a UN official political declaration document was stated that persons with rare diseases deserve […]
Read MoreThis is a free ELIXIR Innovation and SME Forum. The Innovation and SME Forum on the 10-11th of October with […]
Read MoreThe EJP RD Coordinator, Dr. Daria Julkowska, participated to this first annual policy event of the European Commission, bringing together […]
Read MoreThe new IRDiRC’s report “State of Play of Research in the Field of Rare Diseases: 2015-2018” is out!
The International Rare Diseases Research Consortium (IRDiRC) releases the current state of play of research in the field of rare […]
Read MoreMARRVEL (Model organism Aggregated Resources for Rare Variant ExpLoration), a new IRDiRC recognized resource, is available online! It is a […]
Read MorePlease join for the next ENDO-ERN webinar on “New therapeutic targets for the treatment of pancreatic neuroendocrine tumours” on Thursday […]
Read MoreThe global guidance for the conduct of clinical trials is currently undergoing a major revision. As part of the worldwide consultation process, […]
Read MoreELIXIR team has recently published in Nature Reviews Genetics. The article explores how European research infrastructures can be leveraged to […]
Read MoreEURO-NMD host educational webinars that occur on a monthly basis. The webinars are presented with the aim of increasing each […]
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