European Conference on Rare Diseases Calls for Action in Open Letter to European Commission
The European Conference on Rare Diseases and Orphan Products (ECRD) is the largest, patient-led, rare disease policy-shaping event held in Europe. The latest edition of the conference, organised by EURORDIS-Rare Disease Europe under the auspices of the Belgian EU Council Presidency, took place in Brussels and online on 15-16 May 2024. As a result of and informed…