ECRD 2022

Open letter: ECRD partner organisations call on the European Commission for a new European strategy on rare diseases

Following the 11th European Conference on Rare Diseases and Orphan Products (ECRD) that was held from June 27th to July 1st and was organized by EURORDIS and co-organized by Orphanet with EJP RD serving as a Full Partner, the involved parties came together to write an open letter to Commissioner Kyriakides of the European Commission, calling for…

11th European Conference on Rare Diseases and Orphan Products (ECRD) 2022: Poster abstract submission

The 11th European Conference on Rare Diseases and Orphan Products (ECRD) 2022 is being organized by EURORDIS and co-organized by Orphanet, with EJP RD serving as a full partner. The ECRD is a patient-led rare disease policy event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape goal-driven rare disease policies. The fully online conference will take place…