AKU Society launches crowdfunding campaign for Black Bone Disease
The AKU Society, a UK-based charity, has launched a crowdfunding campaign to raise funds for « Leave No Patient Behind – A Global Black Bone Disease Registry » in order to gather information about alkaptonuria (AKU) patients around the world in one single place. Alkaptonuria, also known as AKU or Black Bone Disease, is an extremely rare genetic condition,…