Patients & Researchers Training

This Work Package aims to provide: 
• An understanding of therapeutic development and regulatory processes for medicinal products in the field of rare diseases for patients and researchers
The knowledge and skills required for patients to become legitimate collaborators in RD scientific & translational research
Empowerment of patient representatives in their roles as equal, valued, and efficient partners in research and scientific project / ERNs governance bodies
• Appropriate methods in the empowerment process of the pediatric patients to provide them with knowledge, skills and educational comprehensive tools covering some of the main knowledge gaps related to the paediatric developmental specificities