RARE Conversations Webinar on Research In Rare Diseases: Specificities And Needs

Alexion’s Rare Conversations invites you for its third webinar (Take Three) on Research In Rare Diseases: Specificities and Needs.

The event, in cooperation with BPI, is aimed at discussing how the revision of the OMP Regulation (N° 141/20000), 20 years after its adoption, could trigger new research for the benefit of rare disease patients.

The panellists, who represent a wide range of stakeholders involved in rare diseases research, include Ines Alves (ANDO Portugal President; ERN BOND ePAG), Rob Camp (Patient Engagement Senior Manager, EURORDIS CAB), Dr. Daria Julkowska (Scientific Coordinator, EJP RD), and Prof. Dr. Franz Schaefer (ERKNet Coordinator, Heidelberg University Hospital).

More information and registration here: https://alexion.zoom.us/webinar/register/WN_qjQPV2jiRB2IPLwdN83cBA