Welcome to EJP RD
The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.
Follow us on social media!
Latest News
Save the date: RE(ACT) Congress and IRDiRC Conference 2025
Welcome to the pinnacle event in rare diseases research – the RE(ACT) Congress…
Third EJP RD MOOC on “Health Data Ethics & Regulatory Frameworks in Rare Disease Research”
🚀 Our third EJP RD MOOC on “Health Data Ethics & Regulatory Frameworks…
Interim Analysis, Adaptations and Master Protocols (VIDEO)
https://youtu.be/_O8qJ5m2ytU Today we release our latest online course on “Interim Analysis, Adaptations, and…
Upcoming Events
15
Mai
2024Save the date: 12th European Conference on Rare Diseases and Orphan Products (ECRD)
The 12th edition of the European Conference on Rare Diseases and Orphan Products (ECRD), for which EJP RD is a partner, will take place on 15-16 May 2024, both online and in Brussels! It will be held as an official event under…
- 08:30 - 17:30 (16 mai 2024)
- Brussels, Belgium
17
Mai
2024Key Solutions to Model Longitudinal Natural History Data Application in Ataxia Disease
Description will be updated soon. More information on intermediate courses and Clinical Trials Methodology Watch all the intermediate courses
- 14:00 - 14:00
- Youtube