EJP RD is organizing webinars to showcase the resources involved in the programme and address the following: (1) what is this resource, and how is it related to EJP RD ? (2) How can this resource be helpful for clinicians / researchers involved in rare disease studies? and (3) how can this resource be used by the audience?
The First Webinar will be dedicated to RaDiCo on the 21/01/2021 from 15:00 to 16:00 CET.
RaDiCo aims to build national and international e-cohorts of patients presenting rare diseases (RD), for research purposes. The activities offered by the RaDiCo team ensure the preparation and implementation of e-cohort studies on RD.
The participants will learn about:
- the RaDiCo Platform and its exploitation for the rare disease clinical research field
- the issues relating to Medical data hosting platform
- the tools currently used for clinical research and data management
- E-cohort management and sustainability assessment
A real time demonstration covering the RaDiCo clinical research available tools, will be performed.
At the end of the webinar, questions from the audience will be answered.
If you wish to register for this webinar, please complete this form.