European Joint progamme on rare diseases

EJP RD HIGHLIGHTS

Go to Rare disease perspectives in Central – Eastern Europe Conference. 16 SEPTEMBER 2019, Gdansk, poland

Rare disease perspectives in Central – Eastern Europe Conference. 16 SEPTEMBER 2019, Gdansk, poland

The main aims of this conference – to discuss challenges and opportunities of rare disease research in CEE countries and areas of involvement within EJP RD for multiple stakeholders (incl. researchers, clinicians, authorities, patient organizations). Deadline for registration is 9 September!

Go to eHealth Forum. Digital transformation and globalization in healthcare. 19 – 20 September 2019. Sopot, Poland.

eHealth Forum. Digital transformation and globalization in healthcare. 19 – 20 September 2019. Sopot, Poland.

The aim of the Conference is to present and discuss the key challenges and key actions in digital transformation in healthcare, including the following areas: (a) key trends and factors of digital transformation and globalization in healthcare, (b) improvement of the digital maturity of the health system, (c) interoperability between multiple stakeholders along the complex healthcare system, (d) key actions in e-health in Poland: – implementation of e-health strategy, – introduction of e-prescription, e-referral, patient portal, – privacy and protection of medical data, – building an information system for patients, (e) new initiatives in the field of e-health: – m-health and telemedicine, – analytical and expert systems (big data), (f) digital health as a new business area.

Go to RE(ACT) Congress and IRDiRC Conference. 11-14 MARCH 2020, berlin, Germany

RE(ACT) Congress and IRDiRC Conference. 11-14 MARCH 2020, berlin, Germany

This joint event will continue the RE(ACT) Congress series (6th edition) and IRDiRC Conference series (4th edition). It aims to bring together scientific leaders and experts and young scientists from a variety of breakthrough scientific fields to present cutting-edge research, exchange ideas and discuss policies related to rare diseases research. Patients and patient organizations, who are committed to research, will also be in attendance to share their experiences and perspectives. Registration is open!

Go to Workshop and Hackathon: Molecular pathways for rare disease (FAIR) data analysis. 26 – 29 November 2019, Maastricht, The Netherlands

Workshop and Hackathon: Molecular pathways for rare disease (FAIR) data analysis. 26 – 29 November 2019, Maastricht, The Netherlands

The focus of this workshop is: 1. Pathway creation and curation – especially rare disease and adverse outcome pathways inspired by needs of ERNs and tox community (day 1-2) 2. FAIR data preparation (prep for pathway and network analysis) – define needs of data analysis and do first steps towards solving (day 2-3). The workshop takes place day 1-3, after this there will be a hackathon in which we will start together solving the identified problems and test different approaches. Registration is open!

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