Members

BIOBANKS AND BIOMOLECULAR RESOURCESRESEARCH
INFRASTRUCTURE CONSORTIUM(BBMRI-ERIC), Austria
KLINIKUM RECHTS DER ISAR DER TECHNISCHEN UNIVERSITAT MUNCHEN (TUM), Germany
CENTRO DI RICERCA, SVILUPPO E STUDI SUPERIORI IN SARDEGNA SOCIETÀ A RESPONSABILITÀ LIMITATA, Italy
MEDIZINISCHE UNIVERSITAT GRAZ, Austria
TERVEYDEN JA HYVINVOINNIN LAITOS, Finland

EATRIS
EATRIS involved nodes:

EATRIS ERIC, Netherlands
FUNDACIO HOSPITAL UNIVERSITARI VALL D’HEBRON – INSTITUT DE RECERCA, Spain
UNIVERSITETET I OSLO, Norway

ECRIN

ELIXIR

ELIXIR involved nodes:

EUROPEAN MOLECULAR BIOLOGY LABORATORY, Germany
BARCELONA SUPERCOMPUTING CENTER – CENTRO NACIONAL DE SUPERCOMPUTACION, Spain
CSC-TIETEEN TIETOTEKNIIKAN KESKUS OY, Finland
CONSIGLIO NAZIONALE DELLE RICERCHE, Italy
DANMARKS TEKNISKE UNIVERSITET, Denmark
MASARYKOVA UNIVERZITA, Czech Republic
SIB INSTITUT SUISSE DE BIOINFORMATIQUE, Switzerland
THE CHANCELLOR MASTERS AND SCHOLARS OF THE UNIVERSITY OF CAMBRIDGE, UK
UPPSALA UNIVERSITET, Sweden
THE UNIVERSITY OF MANCHESTER, UK
STICHTING DTL PROJECTS, Netherlands
UNIVERZA V LJUBLJANI, Slovenia

INFRAFRONTIER

INFRAFRONTIER involved node: INFRAFRONTIER GmbH

EUROPEAN REFERENCE NETWORKS (ERNs)

ERN BOND

Coordinating institution: IOR, Italy

ERN CRANIO

Coordinating institution: ERASMUS MC, Netherlands

ENDO ERN

Coordinating institution: LUMC, Netherlands

EpiCARE

Coordinating institution:

ERKNET

Coordinating institution: UKL-HD, Germany

ERN-RND

Coordinating institution: EKUT, Germany

ERNICA

Coordinating institution: ERASMUS MC, Netherlands

ERN LUNG

Coordinating institution: GUF, Germany

ERN-Skin

Coordinating institution: APHP, France

EURACAN

Coordinating institution: CLB, France

EuroBloodNet

Coordinating institution: APHP, France

EURO-NMD

Coordinating institution: APHP, France

ERN-EYE

Coordinating institution: HUS, France

ERN GENTURIS

Coordinating institution: RUMC, Netherlands

eUROGEN

Coordinating institution: RUMC, Netherlands

GUARD-HEART

Coordinating institution: AMC, Netherlands

ITHACA

Coordinating institution: APHP, France

MetabERN

Coordinating institution: Udine University Hospital, Italy

Paedcan-ERN

Coordinating institution: CCRI, Austria

RARE-LIVER

Coordinating institution: NUTH, UK

ReCONNECT

Coordinating institution: AOUP, Italy

RITA

Coordinating institution: UMC, Netherlands

TransplantCHILD

Coordinating institution: SERMAS, Spain

VASCern

Coordinating institution:APHP, France

PATIENT & NON-PROFIT ORGANIZATIONS

RESEARCH INSTITUTIONS

Austria

Austrian Insitute of Technology

Ludwig Boltzmann Institute for Rare and Undiagnosed Diseases

Canada

Canadian Institutes of Health Research

France

Imagine Institute

INSERM

Italy

National Institute of Health

Rizzoli Orthopedic Institute

Poland

Children’s Memorial Health Institute

Portugal

National Health Institute Dr. Ricardo Jorge

Spain

Carlos III Health Institute

RESEARCH FUNDING ORGANISATIONS

AUSTRIA

Organization: FWF
EJP RD project member: Stephanie Resch

BELGIUM

Flanders Organization: FWO
EJP RD project member: Toon Monbaliu & Olivier Boehme

Walloon Organization: FNRS
EJP RD project members: Florence Quist & Arnaud Goolaerts

CANADA

Organization: CIHR-IG
EJP RD project member: Etienne Richer

Québec Organization: FRQS
EJP RD project member: Maxime Beaudoin

CZECH REPUBLIC

Organization: MEYS
EJP RD project member: Daniel Hanšpach

ESTONIA

Organization: MoSAE
EJP RD project member: Heli Paluste

FINLAND

Organization: AKA
EJP RD project member: Heikki Vilen

FRANCE

Organization: ANR
EJP RD project member: Florence Guillot

Organization: FFRD
EJP RD project members: Ingrid Zwaenepoel & Diana Désir-Parseille

GERMANY

Organization: BMBF/PT-DLR
EJP RD project member: Ralph Schuster

Organization: DFG
EJP RD project member: Katja Großmann

GREECE

Organization: GSRT
EJP RD project member: Sofia Dimitropoulou

IRELAND

Organization: HRB
EJP RD project member: Annalisa Montesanti

ISRAEL

Organization: CSO-MOH
EJP RD project member: Irit Allon

ITALY

Organization: MoH IT
EJP RD project member: Gaetano Guglielmi

Organization: MIUR
EJP RD project member: Aldo Covello

Organization: FRRB
EJP RD project member: Paola Bello

Organization: RT/TuscReg
EJP RD project members: Katia Belvedere & Teresa Vieri

LATVIA

Organization: VIAA
EJP RD project member: Janis Ancans

LITHUANIA

Organization: LMT/RCL
EJP RD project member: Dr. Živilė Ruželė

LUXEMBOURG

Organization: FNR
EJP RD project member: Dr. Sean Sapcariu

NETHERLANDS

Organization: ZonMw
EJP RD project member: Sonja van Weely 

POLAND

Organization: NCBR
EJP RD project member: MarcinChmielewski

PORTUGAL

Organization: FCT
EJP RD project member: Anabela Isidro

SLOVAKIA

Organization: SAS
EJP RD project member: Jan Barancik

SPAIN

Organization: ISCIII
EJP RD project members: Maria Druet & Ignacio Baanante

SWEDEN

Organization: SRC
EJP RD project member: Malin Eklund

Organization: Vinnova
EJP RD project member: Frida Lundmark

SWITZERLAND

Organization: SNSF
EJP RD project member: Christoph Meier 

TURKEY

Organization: TUBITAK
EJP RD project member: Jale Şahin 

MULTINATIONAL FUNDING OF PAOs

Organization: INSERM
EJP RD project member: Daria Julkowska

UNIVERSITIES

Belgium

KU Leuven

Germany

University of Charite

University of Aachen

University of Freiberg

University of Heidelberg

University of Tubingen

Goethe University Frankfurt

Italy

Pisana University Hospital Company

University Senese Hospital Company

Lithuania

Vilnius University Hospital Santaros Klinikos

Netherlands

Erasmus MC

Faculty of Medicine

Leiden University Medical Center

University of Maastricht

Radboud University

Polland

Medical University of Warsaw

Medical University of Gdansk

Spain

Polytechnic University of Madrid

University of Leicester

University of Liverpool

University of Newcastle Upon Tyne

Turkey

ACIBADEM University

HACETTEPE University

General Assembly

INSTITUTION ACRONYM	INSTITUTION	REPRESENTATIVE
ACU/ACURARE	ACIBADEM UNIVERSITESI	Osman Ugur Sezerman
AFM	ASS FRANCAISE CONTRE LES MYOPATHIES	Alexandre Mejat
AIT	AIT AUSTRIAN INSTITUTE OF TECHNOLOGY GMBH	Guenter Schreier
AKA	SUOMEN AKATEMIA	Heikki Vilen
AMC	ACADEMISCH MEDISCH CENTRUM BIJ DE UNIVERSITEIT VAN AMSTERDAM	Ronald Cornet
ANR	AGENCE NATIONALE DE LA RECHERCHE	Dominique Dunon-Bluteau
AOUP	AZIENDA OSPEDALIERO UNIVERSITARIA PISANA	Rosaria Talarico
APHP	ASSISTANCE PUBLIQUE - HOPITAUX DE PARIS	Rima Nabbout and Alain Verloes
BBMRI	BIOBANKS AND BIOMOLECULAR RESOURCESRESEARCH INFRASTRUCTURE CONSORTIUM(BBMRI-ERIC)	Boelo Hendrik Steinfelder
BLACKSWAN	BLACKSWAN FOUNDATION	Olivier Menzel
CHARITE	CHARITE - UNIVERSITAETSMEDIZIN BERLIN	Andreas Kurtz
CIHR	CANADIAN INSTITUTES OF HEALTH RESEARCH	Christopher McMaster
CLB	CENTRE ANTICANCEREUX LEON BERARD	Jean-Yves Blay and Isabelle Ray-Coquard
CNAG-CRG	FUNDACIO CENTRE DE REGULACIO GENOMICA	Ivo Gut
CSO-MOH	MINISTRY OF HEALTH	Avi Israeli
CVBF	CONSORZIO PER VALUTAZIONI BIOLOGICHE E FARMACOLOGICHE	Angelica Intini
DFG	DEUTSCHE FORSCHUNGSGEMEINSCHAFT	Katja Grossman
DLR	DEUTSCHES ZENTRUM FUER LUFT - UND RAUMFAHRT EV	Ralph Schuster
EATRIS	EATRIS ERIC	Anton Ussi
ECRIN/PedCRIN	ECRIN EUROPEAN CLINICAL RESEARCH INFRASTRUCTURE NETWORK	Marta Del Alamo
EKUT	EBERHARD KARLS UNIVERSITAET TUEBINGEN	Holm Graessner
EMBL	EUROPEAN MOLECULAR BIOLOGY LABORATORY	Jerry Lanfear
EORTC	EUROPEAN ORGANISATION FOR RESEARCH AND TREATMENT OF CANCER AISBL	Stéphane Lejeune
ERASMUS MC	ERASMUS UNIVERSITAIR MEDISCH CENTRUM ROTTERDAM	Irene M.J. Mathijssen
EURORDIS	EURORDIS - EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION	Virginie Bros-Facer
FCT	FUNDACAO PARA A CIENCIA E A TECNOLOGIA	Anabela Lopes Isidro
FFRD	FONDATION MALADIES RARES	Roseline Favresse
FGB	FONDAZIONE PER LA RICERCA FARMACOLOGICA GIANNI BENZI ONLUS	Viviana Giannuzzi
FNR	FONDS NATIONAL DE LA RECHERCHE	Sean Sapcariu
FNRS	FONDS NATIONAL DE LA RECHERCHE SCIENTIFIQUE	Arnaud Goolaerts
FRQS	FONDS DE RECHERCHE DU QUEBEC - SANTE	Maxime Beaudoin
FRRB	FONDAZIONE REGIONALE PER LA RICERCA BIOMEDICA	Paola Bello
FTELE	FONDAZIONE TELETHON	Chiuhui Mary Wang and Elena Beltrami
FWF	FONDS ZUR FÖRDERUNG DER WISSENSCHAFTLICHEN FORSCHUNG	Stephanie Resch
FWO	FONDS VOOR WETENSCHAPPELIJK ONDERZOEK-VLAANDEREN	Alain Deleener
GSRT	GENIKI GRAMMATIA EREVNAS KAI TECHNOLOGIAS	Sofia Dimitropoulou
GUF	JOHANN WOLFGANG GOETHE-UNIVERSITATFRANKFURT AM MAIN	Holger Storf
HRB	THE HEALTH RESEARCH BOARD	Eileen Treacy
HUGEN	HACETTEPE UNIVERSITESI	Ece Akhan Güzelcan
HUS	HOPITAUX UNIVERSITAIRES DE STRASBOURG	Hélène Dolfus
IMAGINE	IMAGINE INSTITUT DES MALADIES GENETIQUES NECKER ENFANTS MALADES FONDATION	Stanislas Lyonnet
INFRAFRONTIER	INFRAFRONTIER GMBH	Michael Raess
INSA	INSTITUTO NACIONAL DE SAUDE DR. RICARDO JORGE	Sandra Alves
INSERM	INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE	Catherine Nguyen
IOR	ISTITUTO ORTOPEDICO RIZZOLI	Luca Sangiorgi
IPCZD	INSTYTUT POMNIK CENTRUM ZDROWIA DZIECKA	Krystyna Chrzanowska
ISCIII	INSTITUTO DE SALUD CARLOS III	Eva Bermejo-Sanchez
ISS	ISTITUTO SUPERIORE DI SANITA	Domenica Taruscio
IT	INSERM TRANSFERT SA	Catherine Clusel
IT MoH	MINISTERO DELLA SALUTE	Raffaele Ruoco and Monica Paganelli
KU Leuven	KATHOLIEKE UNIVERSITEIT LEUVEN	Eric Legius
LBG	LUDWIG BOLTZMANN GESELLSCHAFT GMBH	Christoph Bock
LMT	LIETUVUOS MOKSLO TARYBA	Zivile Ruzele
LUMC	ACADEMISCH ZIEKENHUIS LEIDEN	Marco Roos and Alberto M. Pereira
MEYS	MINISTRY OF EDUCATION YOUTH AND SPORTS	Judita Klosakova
MoSAE	SOTSIAALMINISTEERIUM	Angela Ivask
MUG	GDANSKI UNIWERSYTET MEDYCZNY	Aleksandra Zurowska
MUW	WARSZAWSKI UNIWERSYTET MEDYCZNY	Piotr Fiedor
NCBR	NARODOWE CENTRUM BADAN I ROZWOJU	Marcin Chmielewski
NKFIH	NEMZETI KUTATASI FEJLESZTESI ES INNOVACIOS HIVATAL	Elod Nemerkényi
RABOUDUMC	STICHTING KATHOLIEKE UNIVERSITEIT	Peter-Bram't Hoen
SAS	SLOVENSKA AKADEMIA VIED	Zuzana Cernakova
SERMAS	SERVICIO MADRILENO DE SALUD	Eduardo Lopez Granados
SNSF	SCHWEIZERISCHER NATIONALFONDS ZUR FORDERUNG DER WISSENSCHAFTLICHEN FORSCHUNG	Christoph Meier
SRC	VETENSKAPSRADET - SWEDISH RESEARCH COUNCIL	Sverker Lundin
TEDDY	"TEDDY - EUROPEAN NETWORK OF EXCELLENCE FOR PAEDIATRIC CLINICAL RESEARCH"	Mariangela Lupo
TUBITAK	TURKIYE BILIMSEL VE TEKNOLOJIK ARASTIRMA KURUMU	A. Mete Karaca
TuscReg	REGIONE TOSCANA	Katia Belvedere
UKA	UNIVERSITAETSKLINIKUM AACHEN	Ralf-Dieter Hilgers
UKL-HD	UNIVERSITAETSKLINIKUM HEIDELBERG	Franz Schaefer
UKLFR	UNIVERSITAETSKLINIKUM FREIBURG	Hanns Lochmüller
ULEIC	UNIVERSITY OF LEICESTER	Anthony J. Brookes
ULIV	THE UNIVERSITY OF LIVERPOOL	Mark Turner
UM	UNIVERSITEIT MAASTRICHT	Chris Evelo
UMCG	ACADEMISCH ZIEKENHUIS GRONINGEN	Morris A. Swertz
UNEW	UNIVERSITY OF NEWCASTLE UPON TYNE	Volker Straub
UNIUD	UNIVERSITÀ DEGLI STUDI DI UDINE	Maurizio Scarpa
UPM	UNIVERSIDAD POLITECNICA DE MADRID	Mark Wilkinson
VIAA	VALSTS IZGLITIBAS ATTISTIBAS AGENTURA	Janis Ancans
VINNOVA	VERKET FÖR INNOVATIONSSYSTEM	Frida Lundmark
VUHSK	VIESOJI ISTAIGA VILNIAUS UNIVERSITETO LIGONINE SANTAROS KLINIKOS	Birute Tumiene
ZonMw	ZORGONDERZOEK NEDERLAND ZON	Radjesh Manna

Policy Board

EUROPEAN ORGANISATIONS

EUCOPE: Diego Ardigò

EuropaBio: Bernard Grimm

IRDiRC: Lucia Monaco and David Pearce

EURORDIS: Valentina Bottarelli

EMA: Jordi Llinares

IMI: Pierre Meulien

DG Santé: Hélène Le Borgne

DG RTD: Catherine Berens

DG CONNECT: Jose Valverde-Albecete

ARMENIA

Ministry of Education: Naira Ayvazan

AUSTRIA

Ministry of Health and Women’s affairs: Friederike Zechmeister-Machhart

BULGARIA

Ministry of Health: Irina Kovacheva

CANADA

Health products and food branch in Health: Sopriya Sharma

Ministry of Innovation, Science and Economic Development: Christopher McMaster

Ministry of Health and Social Welfare: Ingeborg Barisic

CZECH REPUBLIC

Ministry of Education, Youth and Sports: Judita Klosakova

Ministry of Health: Pavla Dolezalova

ESTONIA

Ministry of Social Affairs: Heli Paluste

FINLAND

Ministry of Social Affairs and Health: Tuija Ikonen

FRANCE

Ministry of Solidarity and Health: Jérôme Weinbach

Ministry of Education, Research, and Innovation: Bertrand Schwartz

GEORGIA

Ministry for Health: Ekaterine Khmaladze

GERMANY

Ministry of Health: Theda Wessel

Ministry of Education and Research: Judith Reichel

GREECE

Ministry of Education, Research and Religious Affairs: Sossana Kolyva

HUNGARY

Ministry of Health: Gyorgy Pfliegler

ISRAEL

Ministry of Health: Avi Israeli

ITALY

Ministry of Health: Gaetano Guglielmi

Ministry of Education, University, and Research: Alessandra Renieri

LATVIA

Ministry of Education and Science: Janis Ancans

LITHUANIA

Ministry of Education, Science and Sport: Daine Denisoviene

Ministry of Health: Anželika Balčiūnienė

MALTA

Ministry for Health: Miriam Azzopardi

NETHERLANDS

Ministry of Health, Welfare and Sport: Maaike Wijnhoud

NORWAY

Ministry of Health and Care Services: Nora Gamst

POLAND

Ministry of Health: Jakub Adamski

Ministry of Science and Higher Education: Ryszard Rzepecki

PORTUGAL

Ministry of Health: Diogo Cruz

Ministry of Science, Technology and Higher Education: Patrícia Maciel

SLOVAKIA

Ministry of Health: Tatiana Foltánová

Ministry of Education, Science, Research and Sport: Richard Imrich

SPAIN

Ministry of Health, Social Services and Equality: Pilar Aparicio Azcárraga

TURKEY

Ministry of Industry and Technology: Jale Sahin

Ministry of Health: Onur Burak Dursun

UNITED KINGDOM

Department of Health: Monika Preuss

Executive Committee

PARTNER ACRONYM	COUNTRY	ROLE	NAME
INSERM	France	Coordinator	Daria Julkowska
INSERM	France	IT GGB director	Catherine Nguyen
INSERM	France	Pillar 2 coleader	Ana Rath
DLR	Germany	Pillar 1 coleader	Ralph Schuster
VUHSK	Lithuania	Pillar 3 coleader	Biruté Tumiene
ZON (ZonMw)	Netherlands	Pillar 1 coleader	Sonja van Weely
APHP	France	Pillar 4 coleader	Rima Nabbout
UKL-HD	Germany	Pillar 2 coleader	Franz Schaefer
IOR	Italy	Chair of ERN Research Group	Nicoline Hoogerbrugge
EATRIS	Infrastructure	Pillar 4 coleader	Anton Ussi
EURORDIS	EU organisation (France)	Pillar 3 coleader	Virginie Bros-Facer
INSERM	France	WP1	Daria Julkowska
ISCIII	Spain	WP2	Eva Bermejo-Sanchez
ISS	Italy	WP2	Domenica Taruscio
INSERM	France	WP3	Serge Amselem
EATRIS	Infrastructure	WP3	Anton Ussi
FGB	Italy	WP4	Viviana Giannuzzi
FTELE	Italy	WP4	Stefano Benvenuti
INSERM	France	WP5	Tanguy Onakoy
DLR	Germany	WP6	Ralph Schuster
ZON (ZonMw)	Netherlands	WP7	Sonja van Weely
FFRD	France	WP8	Christine Fetro
CSO/MoH	Israel	WP9	Irit Allon
INSERM	France	WP10	Ana Rath
ULEIC	United Kingdom	WP10	Anthony Brookes
INSERM	France	WP11	Ana Rath
INSERM	France	WP11	Ana Rath
CNAG-CRG	Spain	WP11	Sergi Beltran
ULEIC	Spain	WP12	Anthony Brookes
LUMC	Netherlands	WP12	Marco Roos
UKL-HD	Germany	WP13	Franz Schaefer
UM	Netherlands	WP13	Chris Evelo
ISS	Italy	WP14	Claudio Carta
EURORDIS	EU organisation (France)	WP15	Virginie Bros-Facer
FFRD	France	WP16	Roseline Favresse
EKUT (ERN-RND)	Germany	WP17	Holm Graessner
VUHSK	Lithuania	WP18	Biruté Tumiene
IPCZD (CMHI)	Poland	WP18	Krystyna Chrzanowska
EURORDIS	EU organisation (France)	WP18	Virginie Bros-Facer
EATRIS	Infrastructure	WP19	Anton Ussi
FTELE	Italy	WP19	Stefano Benvenuti
APHP	France	WP20	Rima Nabbout
UKA	Germany	WP20	Ralf-Dieter Hilgers
HSK	Germany	WP20	Maurizio Scarpa

Ethics Board

Marta del Alamo, European Clinical Research Infrastructure Network (ECRIN), France

Viviana Giannuzzi, Fondazione per la ricerca farmacologica Gianni Benzi Onlus (FGB), Italy

Michaela Th. Mayrhofer, Biobanks And Biomolecular Resources research Infrastructure Consortium (BBMRI- ERIC), Austria

Rob Hooft, European life-sciences Infrastructure for biological Information (EMBL-EBI –DTL PROJECTS– ELIXIR/ELIXIR-NL) The Netherland

Giovanni Migliaccio, Consorzio per Valutazioni Biologiche e Farmacologiche (CVBF), Italy

Sonia Gueguen, Institut National De La Sante Et De La Recherche Medicale for Rare Disease Cohorts (RaDiCo-Inserm), France

Irene Schlünder, Biobanks And Biomolecular Resources research Infrastructure Consortium (BBMRI- ERIC), Austria

Deputy members

Annalisa Landi, Fondazione per la ricerca farmacologica Gianni Benzi Onlus (FGB), Italy

Petr Holub, Biobanks And Biomolecular Resources research Infrastructure Consortium (BBMRI- ERIC), Austria