Past RD events

Past RD Events

17

Sep

2021

CeBIL Annual Symposium 2021 – Orphan Drug Innovation: Needs and Priorities

The Centre for Advanced Studies in Biomedical Innovation Law (CeBIL) at the University of Copenhagen and the University of Cambridge’s Centre…

  • 15:00 - 17:30
  • Online

13

Sep

2021

Covering Rare Diseases - National Press Foundation

The National Press Foundation is organising a two-day online workshop entitled “Covering Rare Diseases”. The workshop will take…

  • 16:00 - 22:00 (14 September 2021)
  • Online

07

Sep

2021

EuropaBio Advanced Therapies webinar on EU case for equitable patient access to advanced therapies

EuropaBio continues its Advanced Therapies webinar series of events, interviews, and publications with a virtual discussion on avenues for enhancing the…

  • 16:00 - 17:00
  • Online

07

Sep

2021

Online event on Adult Life & Duchenne

The World Duchenne Organization is organizing an online educational event on Adult Life & Duchenne. The free event on…

  • 14:00 - 16:00
  • Online

07

Sep

2021

Virtual Round Table: Revision of the European Orphan & Paediatric Regulation and impact for the Nordic Rare Disease Community

The European Confederation of Pharmaceutical Entrepreneurs (EUCOPE) is organising a multi-stakeholder round table discussion on the theme of the future of rare diseases…

  • 12:00 - 13:30
  • Online

21

Jul

2021

RDCA-DAP Webinar: How the platform can help inform optimal trial design in progressive rare disease

As part of The Rare Disease Cures Accelerator–Data and Analytics Platform (RDCA-DAP) webinar series on the use of rare disease…

  • 18:00 - 19:00
  • Online

07

Jul

2021

U.N. Political Forum 2021 High-Level Side Event: Addressing the challenges of persons living with a rare disease

The United Nations Political Forum on Sustainable Development (HLPF) is co-organising a High-Level Side Event titled “On the road towards COVID-19 recovery &…

  • 14:00 - 15:30
  • Online

06

Jul

2021

ERN-Skin rare skin disease webinar: Combined cell and gene therapy for Epidermolysis Bullosa

The European Research Network for rare skin diseases (ERN-Skin) is launching a series of scientific webinars on rare skin diseases. Each 1-hour…

  • 13:00 - 14:00
  • Online

29

Jun

2021

ERN-Skin rare skin disease webinar: Genetic discoveries in ichthyosis

The European Research Network for rare skin diseases (ERN-Skin) is launching a series of scientific webinars on rare skin diseases. Each 1-hour…

  • 13:00 - 14:00
  • Online

23

Jun

2021

Scientific CDG Symposium 2021 (Virtual)

Registration are open until 30 April 2021 (deadline for Early Bird registration) Abstract Submission are open until 31…

  • 11:00 - 18:30 (24 June 2021)
  • Online

23

Jun

2021

European Research and Innovation Days 2021

The European Commission (EC) is organising its annual flagship Research and Innovation event, titled “European Research and Innovation Days 2021”, bringing together policymakers, researchers, entrepreneurs and…

  • 09:00 - 18:00 (24 June 2021)
  • Online

16

Jun

2021

RDCA-DAP Webinar: Value of Integrated Data and Analytics in Rare Disease Drug Development

As part of The Rare Disease Cures Accelerator–Data and Analytics Platform (RDCA-DAP) webinar series on the use of…

  • 18:00 - 19:00
  • Online

16

Jun

2021

PedCRIN Final Event: Fostering International Paediatric Clinical Research

Paediatric Clinical Research Infrastructure Network (PedCRIN), a project of ECRIN, announces its PedCRIN Final Event on “Fostering International Paediatric Clinical Research” and invites…

  • 09:30 - 13:00
  • Online

15

Jun

2021

Findacure’s Drug Repurposing for Rare Diseases Conference 2021

Findacure, a UK-based nonprofit that works in the rare disease sector, is organising its annual Drug Repurposing for Rare…

  • 12:00 - 19:00 (16 June 2021)
  • Online

15

Jun

2021

EOSC Symposium 2021: Implementing an inclusive European Open Science Cloud

The European Open Science Cloud (EOSC) Secretariat is organising a symposium on the theme of “Implementing an inclusive European Open Science Cloud”, representing…

  • 09:00 - 15:30 (18 June 2021)
  • Online

11

Jun

2021

Orphan Drug Expert Group Webinar: Addressing the unmet needs of rare disease patients

The European Expert Group on Orphan Drug Incentives (OD Expert Group), in collaboration with media partner EURACTIV, is organising a webinar on…

  • 14:30 - 16:00
  • Online

08

Jun

2021

Share4Rare webinar: Setting the Path for Next Generation Data Sharing

The Share4Rare Consortium is organising a webinar to share the findings and outputs of four years of the Share4Rare project, setting the base…

  • 15:00 - 18:00
  • Online

03

Jun

2021

NIH Virtual Roundtable on Gene-Targeted Therapies: Early Diagnosis and Equitable Delivery

NCATS along with NICHD and NINDS of the National Institutes of Health (NIH) are co-hosting a virtual NIH roundtable meeting on the theme of Gene-Targeted Therapies: Early Diagnosis…

  • 18:00 - 22:30 (17 June 2021)
  • Online

03

Jun

2021

ProDGNE Kick-Off Webinar

The ProDGNE consortium, funded as part of the EJP RD’s Joint Transnational Call 2020 “Pre-Clinical Research to Develop Effective Therapies for…

  • 18:00 - 19:00
  • Online

01

Jun

2021

World Duchenne Organization announces Duchenne Care Conference 2021

The World Duchenne Organization (WDO) is hosting an online Duchenne Care Conference intended for patients, family members, clinicians and others involved in the care of individuals affected by…

  • 00:00 - 00:00 (4 June 2021)
  • Online

31

May

2021

Tech4Growth Health Workshop series: Building Impactful Partnerships Between Start-ups – Corporates – Academia

The Swiss Biotech Association, in collaboration with EFPL Innovation Park and Innosuisse, are organizing a series of Tech4Growth Health workshops as part of their “TFV –…

  • 13:30 - 15:30 (2 July 2021)
  • Online

26

May

2021

European Conference on the Diffusion of Genomic Medicine: Health Economics & Policy

As part of Solve-RD, Solving the unsolved rare diseases, a European project H2020 on genetic research, the Health Economics Team…

  • 15:30 - 19:45 (28 May 2021)
  • Online

26

May

2021

FAIRplus Project Webinar: Discovering the FAIR Cookbook

The FAIRplus project, which aims to develop tools and guidelines for making life science data FAIR (Findable, Accessible, Interoperable, Reusable) is organizing a webinar…

  • 14:00 - 15:00
  • Online

21

May

2021

16th International Congress on Neuromuscular Diseases

The Neuromuscular Disorders Applied Research Group of the World Federation of Neurology is organizing its 16th Annual Congress on Neuromuscular Diseases. The fully virtual…

  • 12:00 - 18:00 (29 May 2021)
  • Online

12

May

2021

Curating the Clinical Genome Virtual Conference

Pr. Gert Matthijs, partner of EJP RD, is part of the Scientific Programme Committee of this year’s Curating…

  • 11:00 - 18:00 (14 May 2021)
  • Online

11

May

2021

Action for Rare Disease Empowerment (ARDEnt) Webinar on "Making the Unseen Seen" Report

Action for Rare Disease Empowerment (ARDEnt), a cross-sector coalition 30 UK-based experts in rare diseases, is organizing a webinar…

  • 20:00 - 21:00
  • Online

11

May

2021

GBT Webinar on Inequalities in Healthcare – Spotlight on Sick Cell Disease Patients in Europe

Global Blood Therapeutics (GBT) is organizing a European multi-stakeholder roundtable event titled “Addressing Inequalities in Healthcare – Spotlight on Sickle Cell Disease…

  • 14:30 - 16:00
  • Online

11

May

2021

EuropaBio Advanced Therapies webinar on value of advanced therapies

EuropaBio invites you for its first webinar in the Advanced Therapies series of events, interviews, and publications titled “Taking health up…

  • 12:00 - 13:00
  • Online

05

May

2021

RARE Conversations Webinar on Research In Rare Diseases: Specificities And Needs

Alexion’s Rare Conversations invites you for its third webinar (Take Three) on Research In Rare Diseases: Specificities and…

  • 14:00 - 15:30
  • Online

27

Apr

2021

Share4Rare webinar for neuromuscular diseases (NMD) patients and caregivers

Share4Rare, in collaboration with the World Duchenne Organization and the John Walton Muscular Dystrophy Research Centre, is hosting…

  • 13:00 - 14:00
  • Online

21

Apr

2021

RDCA-DAP: Searching, visualizing and exploring data in the RDCA-DAP platform to identify data of interest for advanced analysis

Register here Example Disease: Friedreich’s ataxia Presenters: Amanda Borens, MSc, Executive Director, Data Science, DCC; Vicki Theurer Crider, Sr. Project Manager, DCC;…

  • 17:00 - 18:00
  • Online

10

Mar

2021

10th International Meeting on Neuroacanthocytosis Syndromes - Networking event

March 10-12, 2021- online event Neuroacanthocytosis syndromes (NA) are a group of rare, but devastating, neurodegenerative disorders, with…

  • 15:00 - 21:15 (12 March 2021)
  • Online

01

Mar

2021

1st International Conference on Rare Diseases “Building a Pathway from Diagnosis to Access''

1- 2 March 2021 ONLINE The 1st International Conference on Rare Diseases “Building a Pathway from Diagnosis to…

  • 09:00 - 17:00 (2 March 2021)
  • Online

26

Feb

2021

Heritable Human Genome Editing Rare Disease Week Discussion

Heritable human genome editing has been proposed as a means of helping parents avoid passing genetic diseases to…

  • 15:00 - 16:30