Primary Care Task Force on “Identifying Key Challenges and Opportunities to Advance IRDiRC Goals with Focus on Primary Care”
The IRDiRC Diagnostics Scientific Committee (DSC), Interdisciplinary Scientific Committee (ISC), and Funders Constituent Committee (FCC) have set up a joint Task Force to identify challenges and opportunities in rare diseases research focusing on primary care. This may include diagnosis, therapies, ELSI, and patient engagement.
This will be accomplished through several strategies, including developing gateway and point of care services to provide ready access to collaborative multi- and interdisciplinary diagnostic, treatment, and research teams who communicate back to primary care. They will bring together representatives from the stakeholders to identify the priority research areas in primary care that need to be addressed to deliver against the IRDiRC goals.
IRDiRC is currently assembling a team of experts to populate this Task Force and is specifically looking for members with expertise/experience in one or more of the following areas:
- Primary care health provider with experience/research in rare disease
- Involvement in strategic planning for rare disease research
- Able to commit to monthly teleconferences, a yearly meeting, regular committee activities, and email correspondence
How to apply?
For IRDiRC members:
If you are interested in taking part in this IRDiRC activity or would like to propose candidate(s), please send the expression of interest with the following information to the Scientific Secretariat (scisec-irdirc@ejprarediseases.org) before 29 October 2021.
- Name of the candidate
- Affiliation and location of the candidate
- Contact information of the candidate
- Expertise that the candidate is expected to contribute to this Task Force
For Non-IRDiRC members :
If you are not an IRDiRC member but are interested in taking part in this Task Force, please send a short biography and letter of motivation (1 page) to the Scientific Secretariat (scisec-irdirc@ejprarediseases.org) before 29 October 2021.
Only selected candidates will be contacted. Other applications will be kept for potential future collaborations.