Training and Empowerment

Date	Location	Training course	Target audience	Registration open/closed	Organiser	Contact person
27 – 29 April 2020	Rome, Italy	International Course: Training on strategies to foster solutions of undiagnosed rare disease cases	International research community, to clinicians and to medical specialists who have experience and concrete interest in the diagnosis and research of Rare Diseases	Reserve List Deadline: 24 February 2020	ISS	Claudio Carta
26 - 29 November 2019	Maastricht, The Netherland	Workshop and Hackathon: Molecular pathways for rare disease (FAIR) data analysis	Scientists, researchers, clinicians, and bio-informaticians	Registration closed	UM	Chris Evelo
25 - 26 November 2019	Barcelona, Spain	Training for patient representatives and advocates Leadership School on Healthcare & Research	European Patient Advocacy Group Representatives involved in European Reference Networks	Registration closed	EURORDIS	Virginie Bros-Facer
29 - 30 October 2019	Vilnius, Lithuania	Organizing & maximizing rare disease biological sample data in biobanks	Researchers and clinicians	Registrations closed	FTELE	Mary Wang
23 - 25 October 2019	Leuven, Belgium	Quality assurance, variant interpretation and data management in the NGS diagnostics era	Scientists, bio-informaticians and clinicians	Registrations closed	KU Leuven	Gert Matthijs
23 - 27 September 2019	Rome, Italy	International Summer School on Rare Disease Registries and FAIRification of Data	international researcher community, patients, registry curators, database managers, healthcare professionals and students	Registrations closed	ISS	Claudio Carta
10 - 14 June 2019	Barcelona, Spain	ExPRESS Expert Patients and Researchers Summer School	RD patient representatives and researchers	Registrations closed	EURORDIS	Virginie Bros-Facer
1 - 2 April 2019	Milan, Italy	Training Workshop organising & maximising RD biological samples data in biobanks	Researchers and clinicians	Registrations closed	FTELE	Mary Wang