The Share4Rare Consortium is organising a webinar to share the findings and outputs of four years of the Share4Rare project, setting the base for the next generation of data sharing in rare diseases.
The webinar will take place on June 8th from 15.00 – 18.00 CET.
In this online event targeted towards rare disease patients and their families, patient organisations, researchers, clinicians and other interested stakeholders, the presenters will elaborate on the approach and tools that have been created during the project’s lifetime, the importance of patient involvement in research, and why enabling patient organisations to drive their own research is paramount. This will be followed by an interactive discussion where the consortium will answer questions from the audience.
More information and registration here: https://www.share4rare.org/news/share4rare-end-event-setting-path-next-generation-data-sharing-rare-diseases
