Action for Rare Disease Empowerment (ARDEnt) Webinar on “Making the Unseen Seen” Report

  • 11 mai 2021 - 20:00
  • Online

Action for Rare Disease Empowerment (ARDEnt), a cross-sector coalition 30 UK-based experts in rare diseases, is organizing a webinar on the findings of its Making the Unseen Seen report.

The webinar will take place on May 11, 2021 from 20.00 – 21.00 CET.

The ARDEnt Report reveals the impact of the Covid-19 pandemic on every stage of the rare disease patient journey, from diagnosis to eventual management, and the webinar will focus on the following themes:

  • Theme 1: Diagnostic delay
  • Theme 2: Health and social care coordination
  • Theme 3: Research and drug development, including access to treatment.

More information and registration here: