Congratulations to our coordinator, Dr. Daria Julkowska, from the EJP RD community, we are very happy for you! Dr. Julkowska won the EURORDIS Black Pearl 2020 – European Rare Disease Leadership Award for her “outstanding leadership and dedication shown to the rare disease community and the positive impact she has had on rare disease research and partnerships in Europe and beyond” . Furthermore, it has been acknowledged “her commitment to our community (rare disease) within E-Rare, IRDiRC, and most notably as coordinator of the European Joint Programme on Rare Diseases. It is thanks to Daria’s leadership that this ambitious yet game-changing research programme was successfully evaluated and funded, bringing together over 130 institutions in over 30 countries”.