Congratulations to our coordinator, Dr. Daria Julkowska, from the EJP RD community, we are very happy for you! Dr. Julkowska won the EURORDIS Black Pearl 2020 – European Rare Disease Leadership Award for her « outstanding leadership and dedication shown to the rare disease community and the positive impact she has had on rare disease research and partnerships in Europe and beyond » . Furthermore, it has been acknowledged « her commitment to our community (rare disease) within E-Rare, IRDiRC, and most notably as coordinator of the European Joint Programme on Rare Diseases. It is thanks to Daria’s leadership that this ambitious yet game-changing research programme was successfully evaluated and funded, bringing together over 130 institutions in over 30 countries ».
