Training and Empowerment

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DateLocationTraining courseTarget audienceRegistration open/closedOrganiserContact person
1-2 AprilMilan, ItalyTraining Workshop organising & maximising RD biological samples data in biobanks (WP14.4)
researchers and clinicians Registrations closedFTELEMary Wang
10-14 JuneBarcelona, SpainExPRESS Expert Patients and Researchers Summer School (WP15.1)
RD patient representatives and researchersRegistrations closedEURORDISVirginie Bros-Facer
23-27 SeptemberRome, ItalyInternational Summer School on Rare Disease Registries and FAIRification of Data (WP14.5)
international researcher community, patients, registry curators, database managers, healthcare professionals and students Registrations open until June 20, 2019ISSClaudio Carta
23-25 OctoberLeuven, BelgiumQuality assurance, variant interpretation and data management in the NGS diagnostics era (WP14.2)
scientists, bio-informaticians and clinicians Registrations open until June 30, 2019KU LeuvenGert Matthijs
29-30 OctoberVilnius, LithuaniaTraining Workshop Organizing & maximizing RD biological samples data in biobanks (WP14.4)
researchers and clinicians Registrations open in April and close in SeptemberFTELEMary Wang
25-26 NovemberBarcelona, SpainTraining for patient representatives and advocates Leadership School on Healthcare & Research (WP15.3)
European Patient Advocacy Group Representatives involved in European Reference NetworksRegistration closedEURORDISVirginie Bros-Facer