Training and Empowerment

DateLocationTraining courseTarget audienceRegistration open/closedOrganiserContact person
26-29 November 2019Maastricht, The NetherlandWorkshop and Hackathon: Molecular pathways for rare disease (FAIR) data analysis Scientists, researchers,
clinicians, and bio-informaticians
Registration open until October 20th UM Chris Evelo
25-26 November 2019Barcelona, SpainTraining for patient representatives and advocates Leadership School on Healthcare & ResearchEuropean Patient Advocacy Group Representatives involved in European Reference NetworksRegistration closedEURORDISVirginie Bros-Facer
29-30 October 2019Vilnius, LithuaniaOrganizing & maximizing rare disease biological sample data in biobanksResearchers and clinicians Registrations closedFTELEMary Wang
23-25 October 2019Leuven, BelgiumQuality assurance, variant interpretation and data management in the NGS diagnostics era
Scientists, bio-informaticians and clinicians Registrations closedKU LeuvenGert Matthijs
23-27 September 2019Rome, ItalyInternational Summer School on Rare Disease Registries and FAIRification of Data
international researcher community, patients, registry curators, database managers, healthcare professionals and students Registrations closedISSClaudio Carta
10-14 June 2019Barcelona, SpainExPRESS Expert Patients and Researchers Summer School
RD patient representatives and researchersRegistrations closedEURORDISVirginie Bros-Facer
1-2 April 2019Milan, ItalyTraining Workshop organising & maximising RD biological samples data in biobanks
Researchers and clinicians Registrations closedFTELEMary Wang