Past RD Events
12
Mai
2021Curating the Clinical Genome Virtual Conference
Pr. Gert Matthijs, partner of EJP RD, is part of the Scientific Programme Committee of this year’s Curating…
- 11:00 - 18:00 (14 mai 2021)
- Online
11
Mai
2021Action for Rare Disease Empowerment (ARDEnt) Webinar on "Making the Unseen Seen" Report
Action for Rare Disease Empowerment (ARDEnt), a cross-sector coalition 30 UK-based experts in rare diseases, is organizing a webinar…
- 20:00 - 21:00
- Online
11
Mai
2021GBT Webinar on Inequalities in Healthcare – Spotlight on Sick Cell Disease Patients in Europe
Global Blood Therapeutics (GBT) is organizing a European multi-stakeholder roundtable event titled “Addressing Inequalities in Healthcare – Spotlight on Sickle Cell Disease…
- 14:30 - 16:00
- Online
11
Mai
2021EuropaBio Advanced Therapies webinar on value of advanced therapies
EuropaBio invites you for its first webinar in the Advanced Therapies series of events, interviews, and publications titled “Taking health up…
- 12:00 - 13:00
- Online
05
Mai
2021RARE Conversations Webinar on Research In Rare Diseases: Specificities And Needs
Alexion’s Rare Conversations invites you for its third webinar (Take Three) on Research In Rare Diseases: Specificities and…
- 14:00 - 15:30
- Online
27
Avr
2021Share4Rare webinar for neuromuscular diseases (NMD) patients and caregivers
Share4Rare, in collaboration with the World Duchenne Organization and the John Walton Muscular Dystrophy Research Centre, is hosting…
- 13:00 - 14:00
- Online
21
Avr
2021RDCA-DAP: Searching, visualizing and exploring data in the RDCA-DAP platform to identify data of interest for advanced analysis
Register here Example Disease: Friedreich’s ataxia Presenters: Amanda Borens, MSc, Executive Director, Data Science, DCC; Vicki Theurer Crider, Sr. Project Manager, DCC;…
- 17:00 - 18:00
- Online
10
Mar
202110th International Meeting on Neuroacanthocytosis Syndromes - Networking event
March 10-12, 2021- online event Neuroacanthocytosis syndromes (NA) are a group of rare, but devastating, neurodegenerative disorders, with…
- 15:00 - 21:15 (12 mars 2021)
- Online
01
Mar
20211st International Conference on Rare Diseases “Building a Pathway from Diagnosis to Access''
1- 2 March 2021 ONLINE The 1st International Conference on Rare Diseases “Building a Pathway from Diagnosis to…
- 09:00 - 17:00 (2 mars 2021)
- Online
26
Fév
2021Heritable Human Genome Editing Rare Disease Week Discussion
Heritable human genome editing has been proposed as a means of helping parents avoid passing genetic diseases to…
- 15:00 - 16:30