NEWS

ERA-LEARN report on inclusiveness

ERA-LEARN Report on Inclusiveness in European R&I Partnership Programmes has been released.  This report presents the results of an ERA-LEARN survey on inclusiveness targeted at H2020 ERA-NET Cofund and EJP Cofund Programme coordinators. The goal of the survey was to collect information on measures introduced by H2020 ERA-NET Cofund and EJP Cofund Programmes, in order Read more about ERA-LEARN report on inclusiveness[…]

Academia developing medicines for rare diseases to receive free EMA scientific advice

The EMA has decided to waive all fees for scientific advice for academic researchers developing orphan medicines, to further encourage the development of treatments for rare diseases. The academic sector plays an important role in the development of innovative medicines. Their scientific research is often at the source of novel methodologies and innovative medicines with Read more about Academia developing medicines for rare diseases to receive free EMA scientific advice[…]

FDA new grant funding opportunity

The Food and Drug Administration’s (FDA) Office of Orphan Products Development (OOPD) is pleased to announce availability of funds for fiscal years (FY) 2021 – FY 2022 to support innovative and efficient clinical trials for rare diseases and conditions. These studies are intended to provide acceptable data to the FDA that will substantially contribute to Read more about FDA new grant funding opportunity[…]

Virtual coffee with patient organisations and Share4Rare

World Duchenne Organization is involved in Share4Rare, a platform to boost rare disease research and recently, a new and improved role was introduced to the platform for patient organisations (POs). To share this important update and engage with rare disease POs, there will be a virtual meeting on a webinar for Patient Organisations in Rare Read more about Virtual coffee with patient organisations and Share4Rare[…]

European Biotech Week

 European Biotech Week: Celebrating Innovation The European Biotech Week established itself as a week of celebrations of science and biotech. This year, #biotechweek will be from 28 September to 4 October 2020,  start planning your #biotech event and register it with #EuropeanBiotechWeek. It can be anything, from a science cafe to a seminar, an artistic performance, Read more about European Biotech Week[…]

ELIXIR All Hands Online meeting 2020: EJP RD workshop

EJP RD activities that will be introduced during the sixth ELIXIR All Hands Online meeting 2020 that will take place virtually 8 -10 June 2020. The meeting brings together members of the ELIXIR community from across the ELIXIR Nodes, and collaborators from partner organisations, in order to review ELIXIR’s achievements and activities so far and discuss Read more about ELIXIR All Hands Online meeting 2020: EJP RD workshop[…]

COVID-19 Pandemic Readiness: Let’s not reinvent the wheel – European Medical Research Infrastructures are part of the global response

The European Commission led a highly successful round of funding for diagnostics, treatments and vaccines against coronavirus. These resources must be used in the most efficient way possible. The best way is via cross-border, multi-sector and multi-disciplinary research collaboration based on existing networks, to reach a scale of partnerships and coordination that has yet to Read more about COVID-19 Pandemic Readiness: Let’s not reinvent the wheel – European Medical Research Infrastructures are part of the global response[…]

EJP RD at the ECRD Conference

EJP RD is participating at the ECRD online conference that takes place today and tomorrow. In particular, tomorrow our coordinator, Dr. Daria Julkowska, will be one of the speakers presenting during SESSION 0503: “From Research to Access: Is a European Collaborative Approach Possible?” which is part of the” THEME 5 ACHIEVING THE TRIPLE AS BY 2030: Read more about EJP RD at the ECRD Conference[…]