You can find on this page the main events organized by the EJP RD members.

7th International conference on Rare and Undiagnosed diseases Addressing patient needs for Rare Disorders in India

RE(ACT) Congress America 2019

  • From May 8th to 11th 2019
  • Taking place in Toronto, Canada

North American edition of the RE(ACT) Congress 2019 to be held at the Sheraton Center Toronto Hotel in Toronto, Canada, from May 8-11 2019. This 5th edition, the first to be held in North America will include sessions on clinical trials and registries, generalizable rare disease therapeutic approaches, gene editing, cell & gene therapy, stem cells, genetically modified cell therapies/clinical applications of gene therapies indigenous populations and rare diseases, and patient-focused drug development. REGISTER NOW!

Workshop : Organizing & Maximizing Rare Disease Biological Samples Data in Biobanks

  • From April 1st to 2nd 2019
  • Taking place in Milan, Italy

This training workshop is a part of a series of capacity building programs put forth by the European Joint Programme on Rare Diseases(EJPRD). EJPRD is a European Commission co-funded project (GA N° 825575, 2019 – 2023) with the goal “to create a comprehensive, sustainable ecosystem allowing a virtuous circle between research, care and medical innovation”.

The organisation of this workshop series on biobanks and biological samples is coordinated by Fondazione Telethon, Italy. Project partners in this training series are BBMRI-ERIC, Charité – Universitatsmedizin Berlin, Institute of Health Carlos III Spain, Hacettepe University Turkey, Medical University Gdansk Poland, University Medical Centre Groningen the Netherlands and Vilnius University Hospital Lithuania.

All the information can be found here.