Real-world evidence to support HTA/payer decisions about highly innovative technologies

RWE multi-stakeholder initiative – Paper for consultation The draft stakeholder guidance of the multi-stakeholder initiative on ‘Real-world evidence (RWE) to support HTA/payer decisions about highly innovative technologies’ is now open for consultation until 6 January 2020. Commissioned by the Belgian healthcare payer INAMI/RIZIV, this work defines how RWE can be best used to close evidentiary gaps for HTA Read more about Real-world evidence to support HTA/payer decisions about highly innovative technologies[…]

Training: Hands-On introduction to NGS variant analysis

This training gives an introduction to the use of several popular NGS analysis software packages.  Target Audience: All scientists When. 20 – 21 January 2020 (10.00 – 17.00) Objectives Using a full publicly available chromosome read-set from one of the 1000 genome samples: ​Perform a complete analysis workflow including QC, read mapping, read coverage analysis, and Read more about Training: Hands-On introduction to NGS variant analysis[…]

European survey on national training activities in clinical research

An interesting publication based on a survey in 11 ECRIN countries, finds significant investment in training in clinical research in individual countries but need for cross-network exchange. Abstract. Investigator-initiated clinical studies (IITs) are crucial to generate reliable evidence that answers questions of day-to-day clinical practice. Many challenges make IITs a complex endeavour, for example, IITs Read more about European survey on national training activities in clinical research[…]

ICPerMed Recognition 2020

Rome (Italy), 6 November 2019 – The International Consortium for Personalised Medicine (ICPerMed) has published the announcement of their third “Best Practice in Personalised Medicine” Recognition 2020. The objective of this recognition is to honour, encourage, promote and disseminate outstanding best practice examples in personalised medicine. Responsible authors (applicants from any country) of candidate proposals Read more about ICPerMed Recognition 2020[…]

ERN webinars

ERKNet. Clinical Implications of Genetics in Children with Nephrotic Syndrome by Dr. Olivia Boyer. 12 November 2019, 4 pm – 5 pm CET Endo-ERN. Alström Syndrome by Dr. by Pietro Maffeii,  25 November 2019, 3 pm CET ERN-RND. Neuroacanthocytosis syndromes by Dr. Adrian Danek. 3 December 2019, 3 pm CET ERN-NMD. Classification of inflammatory myopathies Read more about ERN webinars[…]