The EJP RD partners are proud to participate in the Rare Disease Day 2019. For this special occasion, we mobilized everyone and asked them to show their rare, and they did! What about you?
We recently worked with Mediaplanet UK on the 2019 Rare Diseases Campaign! Read the interview where Dr. Daria Julkowska (scientific coordinator of the EJP RD) speaks about how the European Joint Programme on Rare Diseases can help turbo-charge the research for the benefits of patients.
Paris, France (February 4, 2019) — The EJP RD will join the Global Alliance for Genomics and Health (GA4GH) as a 2019 Driver Project. This international group of 22 leading genomic data initiatives works collaboratively to develop and pilot GA4GH standards for sharing genomic and health related data. “The European Joint Programme on Rare Diseases Read more about EJP RD named a 2019 GA4GH Driver Project[…]